What having ALS feels like...

If you google ALS you’ll find a million posts saying that it’s “a horrible, unfair, cruel disease.” If you watch TV, people with ALS aren’t blamed for committing suicide or for going on a destructive rampage. Most people assume that people with ALS are these poor souls that have nothing left to live for.

Sure all of this may be true. And yes, it can be terrifying and unfair. But only sometimes. Actually I’d say only about 30% of the time.

Having ALS is much like the following scene:

Serial Killer: *appears from behind a tree 300 yards away*

Me: Oh my god no! *screams*

Serial Killer: *takes a step*

Me: *still screaming*

Serial Killer: *Takes another step*

Me: ....

Serial Killer: *takes a small step*

Me: “Hey mom, yeah I can do dinner tomorrow night.” *Rolls eyes at killer* “Yeah I can talk for a bit. I’m not doing much”

Serial Killer: *Takes a step* *drops knife*

Me: *does taxes*

Me: *Looking up from tax return* “I don’t have time for this, dude. Call me if you’re ever ready”

Yes, there are times that I am afraid and that I think it’s incredibly unfair. But honestly... it just doesn’t feel as bad as it's made out to be. I actually have a lot more fun now than I ever have.